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Building a theory of change for the North East and North Cumbria learning and improvement community

March 26, 2024
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North East and North Cumbria is one of 42 integrated care systems (ICSs) in England, set up in 2022 to bring together partners from across a geographical area to improve health outcomes, reduce health inequalities and prevent ill-health.

Inspired by Cincinnati Childrens, North East and North Cumbria ICS adopted an ambition to be the ‘best at getting better’ by continuously improving the way people in our system are supported for better health and health and care. At the heart of this approach is ‘Boost’, our learning and improvement community that brings people from across the system to inquire, learn, share and take action for improvement together. Currently, there are nearly 7,000 people who are members of this community.

Right from the setup of the ICS, we wanted to create a theory of change (ToC) for the learning and improvement community, setting out why and how it would contribute towards our system improvement goals. Analysis of high performing systems shows how strongly connected networks create a capacity to facilitate knowledge exchange for innovation and improvement across a system. We view relationships and relatedness as primary enablers of system improvement, and regard the leadership role across the ICS as that of system convening, helping to connect people and build relationships, so people can more easily learn, share knowledge and take action together, driven by shared goals for improvement.

The NENC learning and improvement community builds on existing strengths, capabilities and relationships within the ICS area, but we wanted the community to be something additional and amplifying, towards the achievement of goals. So, co-creating a ToC for the community with community members was a way of enabling everyone to be on the same page and to move forward together, with shared purpose.

 

Building a theory of change

Theories of change are often created for change initiatives in the voluntary sector and for academic research projects. This is particularly the case where commissioners and funding bodies ask for a ToC as part of a funding proposal. Theories of change are much less common for large complex change interventions that are initiated by the NHS. We hope that, in future, ToC will become a more commonplace way to plan for change in the formal health and care system as well.

Here is the ToC we have developed for the NENC ICS learning and improvement community:

In this blog, we seek to explain:

  • What a ToC is and why it was important for us to create one for the NENC learning and improvement community
  • How we developed our theory of change
  • What we have learnt in the process

 

About theories of change

A theory of change is an explicit process of thinking through and documenting:

  • how a change intervention is supposed to work
  • why it will work
  • who it will benefit (and in what way)
  • the conditions needed for it to succeed

The ToC fills in what has been described as the ‘missing middle’ between what a change initiative does (its activities or interventions) and how these lead to desired goals being achieved.

Source of image: unknown

Through the development of the ToC, we are better able to understand the direct connection between change activities and the achievement of our long-term goals. This facilitates better planning, in that activities are linked to a detailed understanding of how change actually happens. It also leads to better evaluation, as it is possible for us to measure progress towards the achievement of longer-term goals that go beyond the identification of the specific outputs of our change interventions.

There is no single definition or methodology for a theory of change. There are however, some core principles that are consistent through most of the available frameworks. The ToC should be:

  1. developed collaboratively (or at least consulted on) to reflect the perspective of people engaged in, or impacted by the change
  2. grounded in and/or tested with the available evidence
  3. based on continuous review, learning and improvement

The use of the term ‘theory of change’ is increasing. At the same time, the use of other related terms such as ‘log frame’, ‘logic model’ and ‘programme theory’ are declining:

Tracking the use of terms over time (Source: NPC)

The shift from the use of ‘logic model’ to ‘theory of change’ may be because leaders are increasingly developing models for initiatives that are complex, ambiguous and big picture. Logic models are linear, progressing step by step, typically through from inputs to activities to outcomes. In a logic model, an effect never precedes a cause. By contrast, a ToC is usually more comprehensive and dynamic, considering the complexities and interdependencies within and across the system. A logic model describes what you expect to happen but does not address why it will happen. The purpose of a ToC is to identify why your activities and interventions will create the outcomes it will. Both logic models and ToCs have an important role. However, for a complex change situation like the learning and improvement community (where we need to hypothesise and test our approach because we cannot to certain about cause and effect due to the multiplicity of interacting factors), a ToC is a better fit.

 

Creating a theory of change together for the NENC learning and improvement community

We researched and took advice from those who are highly experienced at creating ToCs in other sectors, particularly the voluntary and community sectors. Change leaders in the formal health and care sector can learn greatly from their expertise. NPC stressed the importance of focusing on the process of developing the ToC as much as the outcome.

By focusing on the process of developing the ToC (who to involve and how) we were able to get a lot of people engaged and invested which helped the learning and improvement community; we got more challenge which led to a better ToC outcome, and it made us focus on what was really important to stakeholders; ‘have to do’s’, not just ‘nice to do’s’. It felt like we were modelling ‘best at being better’.

So, the building of our ToC was a collaborative and iterative process. A first version was created by a group of cross sector partners from across the ICS. It was further developed at a collaborative workshop and then tested with more members of the learning and improvement community. The people who took part in the process included people with lived experience, clinicians, leaders and improvement activists from the NHS and local government, voluntary and community organisations, NHS England and academic researchers.

This is what our stakeholders said:

  • This isn’t a general theory of change; this is OUR theory of change, based on the unique context of the North East and North Cumbria
  • Our approach to improvement as a NENC Integrated care system should be driven by learning and experimentation.
  • We need to be clear about the ‘why’, ‘what’ and ‘how’ of the narrative in the ToC
  • Visuals should be simple and there is a need to emphasise the connection to communities and lived experience.
  • Our work needs to reflect complexity and recognise that a lot of improvement work is already happening within the system.

The ToC approach means we are seeking to collectively explain ‘why’ these activities and interventions will lead to the outcomes we seek. Therefore, we started the ToC with ‘We believe’ – a statement of what we collectively hold to be true. Then we moved to ‘Therefore’And’; setting out how taking a learning approach to our biggest challenges and how a thriving learning and improvement community will create the conditions to activate the changes we want to see (‘Then’). ‘This means’  learning and experimentation become the way that people across North East and North Cumbria do their daily work ‘and’, improvement will be driven by lived experience. Consequently (‘As a result’) the actions of the community will contribute to the achievement of the health and health and care goals of the ICS.

 

Since we created the initial theory of change

Whilst we were able to set out our ToC on a single page, we were also aware that there were multiple components to it. We wanted to our ToC to be usable and accessible to our large and growing community, who have different starting points and needs. So, we also created a summary version:

The summary Theory of Change for North East and North Cumbria Learning and improvement Community

The process of creating our ToC has made us reflect much more deeply about how we think change will occur. It has helped us collectively to set out the complex connections leading to impact. It is guiding the actions we are taking as a learning and improvement community and guiding our assessment of progress and outcomes.

We know that our ToC journey and the frameworks we have developed are influencing others, beyond our integrated care system. For instance, NHS England has recently published its ToC for NHS Impact, the single, shared approach for improvement in the NHS:

The Theory of Change for NHS Impact

Source: The NHS Improvement Board

 

Five things we have learnt through the process of developing our ToC:

  1. Having a ToC has helped us to take a big-picture systemic perspective of our learning and improvement community; it has created a collective understanding of what is important moving forward and is helping to guide our subsequent decisions.
  2. The process of development of a ToC is as important as the output. Being able to co-create our ToC with community members, using a participatory and iterative approach that aimed to reflect the diversity and complexity of people in our system, meant we got a more meaningful output.
  3. The ToC isn’t an academic ‘ivory tower’ exercise; it needs to reflect our action-based priorities for change that improves people’s lives.
  4. There is no ‘right’ way of creating a theory of change or a specific ‘best practice’ framework for a ToC that a team can just adopt. How you go about it depends on how you want it to serve its purpose for your change strategy. We explored and tested a number of different models and approaches. The terms ‘logic model’ and ‘theory of change’ are often used interchangeably but they are different approaches for different purposes.
  5. A ToC is a living document that continues to evolve. It should support continuous learning and improvement from the earliest design stages to implementation. We continue to review our ToC as monitoring and evaluation data becomes available and we understand more about which aspects impact other parts of the system and contribute the most to our overall goals. As a result, we will refine our hypothesis, based on evidence.

Annie Laverty
Suzanne Hamilton
Helen Bevan
Kathryn Grayling

 

Screenshot-from-2023-10-16-13-32-39

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