Positive Behavioural Support

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Learning Disability and Autism Network legacy...

Positive Behavioural Support (PBS) is about creating environments that meet the persons needs, preferences and values. The framework helps us understand why behaviour occurs within the content/environment, focusing on improving quality of life.

Introduction
PBS is:

  • A proactive, person-centred, rights and values led approach
  • People are individuals with equal human rights as others
  • Uses a range of ways to build individual support
  • Reducing restrictive practices
When we talk about behaviour that is everything we do, e.g. sleeping, walking and eating.
Positive Behavioural Support North East and North Cumbria

The North East and North Cumbria Learning Disability and Autism Network have worked on a strategic PBS workforce programme since 2013 it attempts to change the supports around a person who is at risk of behaving in ways that distress themselves or challenge others.

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Workforce Development Approach and Accredited Learning

The North East and Cumbria were a fast track area for transforming care and were provided with funding to upskill the regions workforce. This led to an extensive scoping report being completed by North East and Cumbria in 2016 including all stakeholders. This aimed to understand how the workforce was being supported. The report highlighted variable quality of PBS commissioning, provision and training, a lack of learning pathways to enable staff/families to develop skills and knowledge in PBS and an absence of infrastructure to support this. Overall people did not know what PBS was. Based on this, the scoping report provided recommendations for the region, which led to the development of a workforce development approach to PBS, focusing on building capacity in social care (the PBS educational programmes). The aim of this was to provide a regional approach to building skills, knowledge and competence in PBS and ensure an equal offer is provided across the region.

Find out more about the scoping here: Scoping-report-full-read

The Integrated Care System for the North East and Cumbria committed to the workforce approach to PBS and the sustainability of these educational programmes, which has been evaluated in its current form. There has also been a commitment to the PBS Academy standards to PBS, to ensure there is equity in expectations across the region. This is one of the reasons there is a requirement for organisations to commit to the workforce approach to PBS. Organisations are required to release and support staff to undertake all levels of learning. Again, this model is subscribed to by the region due to there being evidence against the ‘train and hope’ model, whereby individual staff members are sent on training with no system of support. Stakeholder involvement is key to ensuring there is organisational commitment and ongoing success.

It is widely acknowledged that the majority of organisations in the region still do not have existing infrastructures to support PBS and this workforce development model aims to address that. It acknowledges for PBS to be effectively delivered; staff need to be trained at different levels dependent on their role. This approach therefore includes educational PBS programmes at three accredited levels, tailored to the roles of different staff within social care. The practice leader programme was tailored towards staff leading PBS in their organisation. The facilitator course was aimed at managers and team leads, for example, those staff whose role it was to coach and support direct care staff. The third programme was aimed at anyone providing direct support. This provides a unique course tailored to the needs of the workforce. This also builds an infrastructure within organisations not only to supervise staff and competency assess staff during the programme but builds in ongoing support following the end of the programme. It enables organisations to build those infrastructures from within, that as mentioned does not exist for many organisations, but is often key to an ongoing commitment and successful development of PBS as it enables organisations to build capacity, knowledge, and skills and maintain and progress these over time.

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These programmes are designed to complement each other and are not designed to be delivered in isolation. Delivering one programme without an infrastructure, according to the outcomes of the initial scoping report and the evaluation, is likely to be ineffective at building capacity within organisations as the infrastructure required to enable appropriate supervision, ongoing support and senior support may not be present within all organisations.

Find out more about the programme evaluation here: Final_PBS_report_051020

Next steps

We are delighted to offer people the opportunity to express interest in the level 6/7 & level 4 programme of learning in PBS. There are offered as part of our regional workforce development approach to PBS.

The Level 6/7 Leading PBS in organisations is available through Northumbria University and you can find out more information and how to express interest click here: Leading Positive Behavioural Support in Organisations – Advanced Diploma

The level 4 Diploma in Facilitating PBS in teams is available through Sunderland College and you can find out more information and how to express interest here: Positive Behavioural Support – Sunderland College

Remember for the level 4 programme their is a requirement for the organisation to be already signed up to the workforce development approach to PBS and therefore there must be an internal member of staff to provider supervision and support to the level 4 student(s).

Family Carer PBS Workshops
The PBSNEC and Skills for people have worked together to develop and deliver PBS workshops as part of a pilot. A range of PBS workshops has been co-developed and co-delivered with family carers and PBS practitioners across the North East and North Cumbria.

The workshops are aimed at family carers of children and young people with a learning disability and/or Autism.

This model has proved to be highly effective and efficient at delivering much-needed information to family carers of children and young people across the region. The workshops have received positive feedback from those who have attended.

Report on a qualitative evaluation of Positive Behavioural support Workshops for Families:

For more information please get in touch with Skills for People and ask for the PBS team. Tel: 0191 281 8737 or e-mail: [email protected]

Find out more about the workshops here: NENC PBS family carer workshops

Find out more about Viv’s experience of the PBS family carer workshops: https://www.youtube.com/watch?v=wOBVHz3rS2I&t

Alternatives to Medication – STOMP & STAMP
In the wake of the discovery of serious abuse at Winterbourne View hospital, including the overuse of medication to manage behaviour viewed by others as challenging (Department of Health, 2012), NHS England launched the Stopping over-medication of people with a learning disability, autism or both (STOMP) initiative and highlighted the importance of reviewing the use of psychotropic medication whilst also considering how alternative types of support could be used to improve a person’s quality of life (NHS England, 2017). Since this time NHS England rightly expanded on this work to include Supporting Treatment and Appropriate Medication in Paediatrics (STAMP) to highlight the need to ensure children and young people get the support that they need around medication and that alternatives are considered where appropriate (NHS England, 2018).

The need to consider alternatives to medication is further supported in NICE Guidance which sets out the need to consider non-medication interventions as the first line treatment for behaviour thought to be challenging (NICE, 2015). The guidance describes alternative strategies including the concept of behavioural strategies such as Positive Behavioural Support (PBS).

PBS is one way of thinking about alternative types of support for people and it is important to note that the experience of every person will be different depending on their needs and the needs of those around them. However, the value base remains the same, to keep the person at the centre and aim to support them to lead the life they want to live.

Through the PBS forums and communities of practice that have developed as a result of the PBS workforce development work in the North East and North Cumbria, there are many person specific examples that showcase the positive impact upon quality of life for the people affected by this approach. Although these stories are shared locally and celebrated, we feel it is important for people outside of these forums to hear these stories as powerful examples of alternatives to medication that they can relate to and apply to their own lives or practice.

The following video stories aim to share the positive impact of considering alternatives to medication and give you ideas and encouragement to explore further resources. Please use the resources section of this website to explore any topics that come up in these videos further:

  • Watch Shane’s story, where using alternative types of support led to a reduction in his medicines. Now he has more energy and is living the life he wants.
  • Watch Ethan’s story about how he’s been able to reduce his anti-epileptic medicine using alternative types of support and is enjoying life a lot more.
  • Watch Ann-Marie show how she was supported through a STOMP STAMP review and now feels more confident.
  • Watch Debbie talk about her experiences of successfully supporting her daughter Lucy using alternatives to medication.

The focus of the video is on how an organisational approach to PBS within social care can support wider initiatives such as STOMP and STAMP. The video shares how using this approach has led to reduced medication use and improved quality of life for two people with a learning disability supported by these social care organisations.

This is a great video to share with other social care organisations as well as health colleagues as it demonstrates just how important it is to have a systemic approach to supporting people with a learning disability and behaviours that challenge:

Screenshot-from-2023-10-16-13-32-39

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